National Institutes of Health (NIH)
See the following -
Big Push For Open Access
New taxpayer-funded research must be made available to the public free of charge within a year of its publication, the Obama administration said Friday. Read More »
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Bill Gates Won’t Save You From The Next Ebola Outbreak
In late August 2014, Tom Frieden, then director of the Centers for Disease Control and Prevention, traveled to West Africa to assess the raging Ebola crisis. In the five months before Frieden’s visit, Ebola had spread from a village in Guinea, across borders and into cities in Liberia and Sierra Leone. Médecins Sans Frontières, the first international responder on the scene, had run out of staff to treat the rising numbers of sick people and had deemed the outbreak “out of control” back in June...
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Biohacking Healthcare - Part 2
One of the most valuable research tools is a model of the type of problem you are trying to solve. This allows for study of the problem mechanism and allows attempts at solving various parts of the problem without disrupting an actual patient or when such is unavailable... Read More »
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Cancer Maps Show The Power And Limits Of Data For Public Policy
...Linda Pickle has spent decades using maps and other spatial analyses to gather insights from cancer data. She likely had the first copy of Geographic Information System software at the National Institutes of Health, NCI’s parent agency, she told Nextgov recently, and she’s watched as visualization data went from “little better than crayons” to Google Maps applications that nearly anyone can use...
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Capturing Open Access Papers for the Smithsonian Institution
As noted elsewhere in this blog, the publication record of Smithsonian scholars includes a growing portion of open access (OA) articles. During 2012, nearly 14% of scientific papers authored by Smithsonian scientists were published in OA journals. This is up from 7% in 2008 and it is expected to grow. Read More »
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Cardiologist Eric Topol on Why We Need to Map the Human Body and “Go Deep” with Big Data
This year’s Big Data in Biomedicine conference included a passionate talk from cardiologist Eric Topol, MD, of The Scripps Research Institute. Topol, who has been named one of the most influential physician leaders in the United States, described in gripping detail what’s wrong with medical care today and why we need to move forward to the kind of individualized medicine that can make for healthier individuals and healthier populations...
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CDC Closes Labs After Anthrax, Bird Flu And Small Pox Scares
Days after the discovery of small pox vials in a NIH medical laboratory in Bethesda, the Center For Disease Control announced Friday that labs connected to anthrax and bird flu scares would be temporarily closed...
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Citing Anthrax And Smallpox Scares, White House Tells Federal Labs To Take Stock
After recent mishandling of potentially deadly pathogens, the White House is urging all federal laboratories to conduct what it is calling a “safety stand-down,” security and science officials announced Thursday. Agencies that handle infectious agents or toxins have been asked to complete overviews of their programs within 30 days of a memo dated Aug. 18...
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Clade X pandemic exercise highlights policies needed to prevent or reduce the worst possible outcomes in future pandemics
The outbreak of a moderately contagious and moderately lethal novel pathogen precipitated a catastrophic end to the scenario in Clade X, the day-long pandemic tabletop exercise hosted by the Johns Hopkins Center for Health Security on May 15 in Washington, DC. Clade X simulated a series of National Security Council–convened meetings of 10 US government leaders, played by individuals prominent in the fields of national security or epidemic response. Their dialogue as the scenario unfolded addressed significant uncertainties in current prevention and response capabilities, hamstrung by policy challenges at the federal level.
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ClinCapture Announces East Coast Expansion With New York Office
ClinCapture has opened a new local office on West Broadway in New York, NY. The expansion of the California based EDC vendor to New York City allows for ClinCapture to better serve its East Coast customers as the company continues to grow. Headquartered in San Francisco, CA, ClinCapture empowers its customers to build their own studies, lower their clinical trials costs, and streamline their data capture processes...- Login to post comments
Clinical Trial Reporting Failures Can Harm Research, Patients
Hospitals, medical schools, businesses, and even the National Institutes of Health are routinely violating a federal law requiring clinical trials to be reported to the public, a STAT investigation recently found. In response, we asked experts to offer their thoughts on why low rates of clinical trial reporting is a problem, and what can be done about it...
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Confusions In The OSTP OA Policy Memo — Three Monsters And A Gorilla
The US Office of Science and Technology Policy (OSTP), part of the Executive Office of the President, has issued a sweeping policy memo entitled, “Increasing Access to the Results of Federally Funded Scientific Research.” It directs all federal research agencies to develop and implement open access (OA) plans over the next 2-3 years. Read More »
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Copyright Week: The Digital Public Domain
Whatever one thinks about the rest of the Google Book business, I think it’s important to focus on the digitization of public domain books by both Google and the Open Content Alliance and to use these efforts as the basis for conceiving of the Digital Public Domain as a more robust version of the traditional public domain. Read More »
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Could Opening Up The Doors To The World’s Medical Research Save Healthcare?
What if you had access to all of the medical research in the world? Or better yet, what if the physician treating your particularly complex or rare condition had access to the latest research? Or what if a public health organization in your community could access that research to inform policymakers of measures to advance public health? Read More »
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Digital Access To Knowledge: Research Chat With Harvard’s Peter Suber
How much access is there to cutting-edge research online? The reality is that access to the world’s deepest knowledge — that produced by professional researchers — remains contested in the digital space. Read More »
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