Open Access
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Opening Up the FDA
The President's Executive Order on Open Government Data states, "Government information shall be managed as an asset throughout its life cycle to promote interoperability and openness, and, wherever possible and legally permissible, to ensure that data are released to the public in ways that make the data easy to find, accessible, and usable." Interestingly, the Department of Health and Human Services (HHS), which includes the Food & Drug Administration (FDA), has a tradition of expansive disclosure of information and/or data it generates or collects – contrary to current practices at the FDA. Hopefully, changes being made to 'open up' the FDA will start to accelerate. Read More »
Openness And Visibility
ICT Update is not just about technology. This issue’s guest editor, Stephen Rudgard from FAO, is a major actor in opening agricultural knowledge online. He has asked a number of experts from different backgrounds to provide their perspective on various aspects of opening content. Read More »
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OSEHRA 2015: Zoeticx CEO to Speak during Open Health Panel at the Open Source Summit
Thanh Tran, CEO of Zoeticx will speak as a member of the Open Health panel discussion on Wednesday, July 29, at the upcoming OSEHRA Open Source Summit. His participation on the panel will be followed by a more extensive presentation on the topic of “Healthcare Open Access Architecture” to take place during one of the breakout sessions. The OSEHRA Summit, now in its 4th year, has become the leading conference addressing issues of open solutions, open source, collaboration, transparency, and innovation in healthcare information technology. The conference will take place at the Bethesda Marriott North Hotel and Conference Center in Maryland from July 29 to the 31st. Keynote speaker at the conference will be Robert A. McDonald, Secretary of the US Department of Veterans Affairs (VA).
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OSI Approves Cryptographic Autonomy License and CERN Open Hardware Licenses
As the steward of the Open Source Defintion, the Open Source Initiative has been designating licenses as "open source" for over 20 years. These licenses are the foundation of the open source software ecosystem, ensuring that everyone can use, improve, and share software. When a license is approved, it is because the OSI believes that the license fosters collaboration and sharing for the benefit of everyone who participates in the ecosystem. The world has changed over the past 20 years, with software now used in new and even unimaginable ways. The OSI has seen that the familiar open source licenses are not always well-suited for these new situations. But license stewards have stepped up, submitting several new licenses for more expansive uses. The OSI was challenged to evaluate whether these new concepts in licensing would continue to advance sharing and collaboration and merit being referred to as "open source" licenses, ultimately approving some new special purpose licenses.
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Patents: The Next Open Access Fight
There’s been a lot of talk lately about the state of publicly funded research. Many, including EFF, have long called on Congress to pass a law requiring that publicly funded research be made available to the public. With strong support for FASTR (the Fair Access to Science and Technology Research Act) in both parties, Vice-President Biden making open access a major component of his Cancer Moonshot initiative, and presumptive presidential nominee Hillary Clinton including access to research in her platform, signs are looking good that Congress will finally pass an open access mandate. It’s just a matter of when...
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Patient Engagement, Data Liberation And Portability
Open source drug discovery can be an influential model for discovering and developing new medicines and diagnostics for neglected diseases. It offers the opportunity to accelerate the discovery progress while keeping expenditures to a minimum by encouraging incremental contributions from volunteer scientists.
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Precision Medicine, Genomics & 'Open Health'
Traditional medicine, integrative medicine, preventive medicine, predictive medicine, regenerative medicine – and now we have 'precision medicine'.
The purpose of this article is to provide a brief introduction and high level overview of 'Precision Medicine' to health information technology (IT) managers and analysts, along with pointers to key resources or sources of information they might want to explore if they decide to delve deeper into the topic. Read More »
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Predatory Publishers corrupting 'open access' movement
When e-mail first became available, it was a great innovation that made communication fast and cheap. Then came spam — and suddenly, the innovation wasn’t so great. It meant having to filter out irrelevant, deceptive and sometimes offensive messages. It still does.The same corruption of a great idea is now occurring with scholarly open-access publishing. Read More »
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Publication Liberation
Making academic publications freely available to researchers and curious students should be standard practice... Read More »
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Research Transparency: 5 Questions about Open Science Answered
Open science is a set of practices designed to make scientific processes and results more transparent and accessible to people outside the research team. It includes making complete research materials, data and lab procedures freely available online to anyone. Many scientists are also proponents of open access, a parallel movement involving making research articles available to read without a subscription or access fee...
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Researchers At Carnegie Mellon University Use Open Source 3D Printers To Rebuild Damaged Hearts
As of this month, over 4,000 Americans are on the waiting list to receive a heart transplant. With failing hearts, these patients have no other options; heart tissue, unlike other parts of the body, is unable to heal itself once it is damaged. Fortunately, recent work by a group at Carnegie Mellon could one day lead to a world in which transplants are no longer necessary to repair damaged organs. "We've been able to take MRI images of coronary arteries and 3-D images of embryonic hearts and 3-D bioprint them with unprecedented resolution and quality out of very soft materials like collagens, alginates and fibrins," said Adam Feinberg, an associate professor of Materials Science and Engineering and Biomedical Engineering at Carnegie Mellon University.
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Rice U. Lab Creates Open-Source Optogenetics Hardware, Software
Nobody likes a cheater, but Rice University bioengineering graduate student Karl Gerhardt wants people to copy his answers. That’s the whole point. Gerhardt and Rice colleagues have created the first low-cost, easy-to-use optogenetics hardware platform that biologists who have little or no training in engineering or software design can use to incorporate optogenetics testing in their labs. Rice’s Light Plate Apparatus (LPA) is described in a paper available for free online this week in the open-access journal Scientific Reports...
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Rita Gardner Reflects On Open Access And Learned Societies
Learned societies are a fundamental part of the research ecology, providing a substantial intellectual, public and reputational good, at minimal cost to the UK public purse. Read More »
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Rutgers Chemistry Professor Helen Berman To Receive Benjamin Franklin Award For Open Access In The Life Sciences
Helen M. Berman, Rutgers University Board of Governors Professor of Chemistry and Chemical Biology (CCB) and the Center for Integrative Proteomics Research, has been selected to receive the Benjamin Franklin Award for Open Access in the Life Sciences from Bioinformatics.org, also known as The Bioinformatics Organization, Inc.
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Sage Bionetworks Releases First-of-its-Kind Data from Parkinson’s iPhone Study
Sage Bionetworks, a nonprofit biomedical research organization, today released an unparalleled dataset that captures the everyday experiences of more than 9,500 people to help speed scientific progress toward treatments for people with Parkinson’s disease. The dataset, which consists of millions of data points collected on a nearly-continuous basis through the iPhone app mPower, will provide researchers with unprecedented insight into the daily changes in symptoms and effects of medication for people with Parkinson’s.
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