data sharing

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Knowledge-Sharing Platforms Emerge From Life Science Research Collaboration

David Raths | KMWorld | March 1, 2013

One of the hottest topics at life science conferences these days is collaboration. For budgetary reasons, pharmaceutical companies that 10 or 15 years ago would have handled every aspect of research and development in-house have externalized those services to academic partners and outsourced service providers. Read More »

StartUp Health Announces 10 Health Moonshots with Global Army of Health Transformers to Improve Health of Everyone in the World

Press Release | StartUp Health | October 24, 2016

Today, StartUp Health, its global army of Health Transformers and Vice President of the United States Joe Biden kicked off the 14th annual Cleveland Clinic Medical Innovation Summit sharing an urgent message with nearly 2,000 health leaders, CEOs, and entrepreneurs: the time is now to organize, break down silos, and adopt a “Health Transformer Mindset” to speed up progress in solving big health challenges like ending cancer, ensuring access to care, and improving the wellbeing of people worldwide...

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15 Blockchain Whitepapers Awarded Winners of US Department of Health and Human Services Challenge

Luke Parker | Brave New Coin | August 30, 2016

A challenge held by the US Department of Health and Human Services (HHS)  to encourage Blockchain use in the Health Information Technology field resulted in 15 winning whitepapers. The Department’s Office of the National Coordinator for Health Information Technology (ONC) first announced the “Use of Blockchain in Health IT and Health-Related Research” challenge in July...

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5 Q’s for Nnenna Nwakanma, Africa Regional Coordinator for the World Wide Web Foundation

Alexander Kostura | Center for Data Innovation | September 26, 2016

Right now, the community of civil society, media, and academia using open data is still growing in Africa. Governments are still not sharing enough open data. And while more and more freedom of information laws are being passed, citizen inquiries are not always responded to in practice. We don’t have clear open data champions.But I’m hopeful this will change because in spite of the challenges a number of excellent projects have shown us what’s possible. For example, the Africa Data ConsensusAfrica Open Data Conference, and the growing network of open street mapping across the continent.

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9 Ways Future EHRs Need to Support ACOs

Michelle McNickle | Healthcare IT News | July 11, 2012

Just a few years ago, the industry saw most vendors touting their support for meaningful use. Today, that focus is slowly shifting to the "ready for ACO" mentality. But unlike meaningful use, said Shahid Shah, software analyst and author of the blog, The Health IT Guy, the technology required for ACOs isn't as well defined, leaving most vendors' claims "untestable." Read More »

A New Resource For Agriculture

Pete Cranston | ICT Update | June 1, 2013

Why is open access to research and other data important? Read More »

Academic Publishers Have Become The Enemies Of Science

Mike Taylor | The Guardian | January 16, 2012

The US Research Works Act would allow publishers to line their pockets by locking publicly funded research behind paywalls Read More »

Across Pharma, Few Open Arms For Trial Data Sharing

Alex Philippidis | Genetic Engineering & Biotechnology News (GEN) | July 9, 2013

Industry inches toward consensus on limited sharing as EMA, GSK press for open access. Read More »

Advancing Antimalarial Drug Research Through Open Source Initiatives

Jeremy Burrows | The Guardian | July 24, 2013

Open research can lead to new drugs tackling diseases that afflict the world's poor. But first, more scientists need to buy into contributing to something bigger than their careers Read More »

Advancing the Coordination of Health IT for Military and Government

Press Release | Defense Strategies Institute | August 12, 2016

Defense Strategies Institute is proud to announce their 11th DoD/VA and Gov Health IT Summit occurring on October 4-5, 2016. With the central theme of “Advancing the Coordination of Health IT,” the Summit will bring together senior leaders from DoD, VA, HHS, Federal and State agencies, along with leaders from Industry and Academia that support them, for two days of Government briefings and informal discussions in their "Town Hall" setting in Alexandria, VA. DSI has created a Summit that will bring together a variety of stakeholders in order to build out two days of discussion and debates that tackle many of the areas involved in modernizing the DoD and VA health systems in order to provide better care to our warfighters and veterans.

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After West Disaster, News Study Finds U.S. Chemical Safety Data Wrong About 90 Percent

Jon McClure, Daniel Lathrop, and Matt Jacob | Dallas News | August 24, 2013

Even the best national data on chemical accidents is wrong nine times out of 10. A Dallas Morning News analysis of more than 750,000 federal records found pervasive inaccuracies and holes in data on chemical accidents, such as the one in West that killed 15 people and injured more than 300. Read More »

AMA Immediate Past President Challenges Healthcare IT Leaders to Fix EHRs

Mark Hagland | Healthcare Informatics | August 11, 2016

Speaking both as a practicing emergency physician and as the immediate past president of the American Medical Association (AMA), Steven J. Stack, M.D., challenged the healthcare IT leaders in his audience on Thursday to do everything possible to encourage improvements in electronic health record (EHR) technology for the sake of frustrated physicians, when he delivered the opening keynote address at the Health IT Summit in Nashville, sponsored by the Institute for Health Technology Transformation (iHT2—a sister organization to Healthcare Informatics under the Vendome Group, LLC corporate umbrella) at the Sheraton Downtown Nashville, in Nashville, Tenn...

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AMIA’s Doug Fridsma: Time for the Feds to Truly Open Up Patient Records to Fully Interoperable Data Use

Mark Hagland | Healthcare Informatics | June 13, 2016

Access to information and the ability to integrate and use information has changed how individuals book travel, find information about prices and products, and compare and review services. Information can empower individuals, but health care has lagged behind other fields. It is unconscionable that in 2016 most patients are unable to obtain their entire medical record unless they print it out. While progress has been made in the last several years to support patients’ access to their information through various electronic means, such as Blue Button and patient portals, this is not sufficient to make patients first-order participants in their care, their health and their research efforts...

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An Example Of Open Source Drug Discovery

Matthew Todd | Intermolecular | July 14, 2013

“Open Source Drug Discovery? How does that work?” I am asked this quite a lot. There are some principles and core practices that are involved, embodied in the Six Laws, but those are quite hifalutin. Let me give a practical example. Read More »

Apple’s CareKit Is the Best Argument Yet for Strong Encryption

Brian Barrett | Wired | March 21, 2016

On the eve of his company’s court date with the FBI, where it will defend its right to not weaken the security of its own devices, Apple CEO Tim Cook took the stage at a small theater in Cupertino to introduce a few new devices. The message of the event’s opening, though? Encryption matters. And soon, on iOS, it will matter even more. While Cook’s remarks were brief, they were determined. “We need to decide as a nation how much power the government should have over our data, and over our privacy,” Cook said before a mixed crowd of journalists and Apple employees.

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