health information

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VA Joins NATE and the Blue Button for Consumers (NBB4C) Trust Bundle

Press Release | National Association for Trusted Exchange | June 9, 2016

The National Association for Trusted Exchange (NATE) today welcomed its newest member, the U.S. Department of Veterans Affairs (VA). By joining NATE and participating in the NATE Blue Button for Consumers (NBB4C) Trust Bundle, VA is demonstrating its commitment to enabling its Veterans to send their health data to the consumer-facing application (CFA) of their choice. 

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4 Big Data Threats Health Org’s Are Socially Obligated To Safeguard Against

Carl Ascenzo | Government Health IT | September 20, 2012

The explosion of big data continues as it brings to picture a wealth of information possessed by the healthcare industry including credit card information, personal security details, medical procedures, diagnosis codes, insurance claims and more. Read More »

A Middleware Dose: the Antidote to Healthcare’s EHR Interoperability Bug

Despite wide penetration of EHR's in hospitals, clinics and physician offices, access to patient information between systems continues to plaque our healthcare system. From a physician's perspective, we have a duty to provide the best care to addresses our patients’ health needs with the least possible risks of adverse events...Zoeticx, a developer of EHR middleware, has developed such a platform that has already been demonstrated to go far beyond the limitations present in EHR’s. Adding additional functionality to patient data has been accomplished with a seamless connection to disparate EHR systems. An additional benefit of this technology is that front-line providers no longer need to worry about accessing many different systems to manually utilize the data for patient care.

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Adrian Gropper Calls for "HIE of One" to Protect Patient Privacy

Leonard Kish talks with patient privacy advocate and expert, Dr. Adrian Gropper, about his work in providing better patient control over their health data and the role of agency, identity and existing internet tools to fulfill better patient control. Dr. Gropper's take on The Pledge for interoperability and patient access: it's a deflection to try to skirt around government action. According to Gropper, who was interviewed during the HIMSS16 conference, the patients' right of consent around their data has been seen as too risky, but the converse is now that there is zero accountability and massive amounts of data are being sold on the black market.

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Automated Blue Button, Patient Engagement Are Health Camp Hot Topics

Don Fluckinger | SearchHealthIT | September 24, 2012

At HealthCamp Boston, patients and patient advocates took over the health information discussion, reciting "e-Patient Dave" deBronkart's 3-year-old mantra: "Gimme my damn data." Read More »

Carequality Interoperability Framework Published

Press Release | Carequality, The Sequoia Project | December 7, 2015

Carequality today announced publication of the Carequality Interoperability Framework. The comprehensive Framework consists of multiple elements, including legal terms, policy requirements, technical specifications, and governance processes, which operationalize data sharing under the previously approved Principles of Trust. The Framework is now available for health information exchange networks, vendors, payers, and others across the healthcare ecosystem to adopt, providing a practical approach to unlocking previously unseen levels of connectivity. Read More »

Conemaugh Health System One Of First Hospitals To Join Nationwide Health Information Network (NwHIN)

Press Release | Conemaugh Health System | September 11, 2012

The Conemaugh Health System is the first Pennsylvania non-government health care system and one of just 30 in the United Systems to go “LIVE” on the Nationwide Health Information Network (NwHIN) Exchange. Read More »

FDA Launches Open Source Tool to Help Capture Data from Patients

Press Release | Food and Drug Administration | November 6, 2018

Today the U.S. Food and Drug Administration is announcing the MyStudies app, a new mobile technology to foster the collection of real world evidence via patients' mobile devices. Real world data can be collected from a variety of sources, such as electronic health records, claims and billing activities, and product and disease registries, as well as from patient-generated data including in home-use settings, or from data gathered from other sources, such as mobile devices. As part of the agency's work to foster greater opportunities around real world evidence, the FDA partnered with Kaiser Permanente on a pilot study to measure the functionality and engagement of the MyStudies app.

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Five Healthcare IT Leaders Adopt Carequality Interoperability Framework

Press Release | Carequality, The Sequoia Project | January 21, 2016

Carequality, an initiative of The Sequoia Project, today announced initial implementers of the Carequality Interoperability Framework released in December 2015. The companies are athenahealth®, eClinicalWorks, Epic, NextGen Healthcare and Surescripts. The five organizations have agreed to provide health information exchange services for their customers under the comprehensive Framework, which consists of legal terms, policy requirements, technical specifications, and governance processes. The Framework is an operationalization of the groundbreaking Principles of Trust to enable nationwide health information exchange. Read More »

Hawaii and Health Care: A Small State Takes a Giant Step Forward

Ann Waldo | O'Reilly Radar | August 21, 2012

In an era characterized by political polarization and legislative stalemate, the tiny state of Hawaii has just demonstrated extraordinary leadership. The rest of the country should now recognize, applaud, and most of all, learn from Hawaii’s accomplishment. Read More »

Health IT For Consumers Could Transform Health Care

Doug Firby | Troy Media | October 25, 2012

Some of the great innovators in retailing in the past decade emerged as giants because they recognized that consumers prefer the convenience of electronic delivery. Read More »

HELINA 2018: Call for Papers

Press Release | HELINA | May 5, 2018

The 2018 edition of the Pan-African health informatics conference (HELINA) is scheduled from 3rd – 8th December 2018 in Nairobi, Kenya. The conference will be hosted by the Kenya Health Informatics Association (KeHIA) and will focus on how technology is being used to strengthen health systems in the African Region. HELINA conferences have been known to provide a platform for both academia and industry to showcase results of scientific research and industry practice. 

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HHS CTO on the Power of Connection

A learning system for health is not a new concept. It is an ancient instinct to share our experiences and stories. But technology allows us to widen the network of people we can talk with, increase the velocity of those conversations, inject them with more source material, then archive and make them searchable. For patients and caregivers, building that system means connecting people who share a diagnosis so they can share insights with each other – and with researchers. For example, the FDA is now partnering with PatientsLikeMe to explore how patient-reported data can shed light on drug safety.

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HHS Publishes FDASIA Health IT Report

Brian Ahier | Advanced Health Information Exchange Resources | April 3, 2014

HHS released a draft report that includes a proposed strategy and recommendations for a health information technology (health IT) framework, which promotes product innovation while maintaining appropriate patient protections and avoiding regulatory duplication. The congressionally mandated report was developed in consultation with health IT experts and consumer representatives and proposes to clarify oversight of health IT products based on a product’s function and the potential risk to patients who use it.

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HHS Releases Interoperability Rules

Press Release | HHS | February 11, 2019

The U.S. Department of Health and Human Services (HHS) today proposed new rules to support seamless and secure access, exchange, and use of electronic health information. The rules, issued by the Centers for Medicare & Medicaid Services (CMS) and the Office of the National Coordinator for Health Information Technology (ONC), would increase choice and competition while fostering innovation that promotes patient access to and control over their health information. The proposed ONC rule would require that patient electronic access to this electronic health information (EHI) be made available at no cost.

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