Francis Collins

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EHRs to Play Central Role in Precision Medicine Initiative

Greg Slabodkin | Health Data Management | March 5, 2015

...According to Collins, scientific advances also are accelerating progress toward a new era of precision medicine. “Historically, doctors have been forced to base their recommendations for treatment on the expected response of the average patient,” he explained. “But recent advances, including the plummeting costs of DNA sequencing, now make possible a more precise approach to disease management and prevention that takes into account individual differences in genes, environments, and lifestyles.”

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Health Care Leaders Gather To Address Challenges, Opportunities Of Open Health Data At Health Datapalooza 2014

Press Release | Health Data Consortium | May 16, 2014

The Health Data Consortium (HDC),a non-profit advocacy and membership organization dedicated to mobilizing health data to transform the U.S. health care system, announced keynote speakers for Health Datapalooza 2014, being held at the Marriott Wardman Park on June 1-3 in Washington, D.C...

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How To Lead A Team To Greatness, From The Man Who Sequenced The Human Genome

Mark Micheli | Nextgov | June 5, 2013

From sequencing the human genome to running the largest biomedical research agency in the world, Dr. Francis Collins, Director of the National Institutes of Health, has a record of harnessing complex public institutions to get things done. Read More »

Major Patent Pool Opens Up Research On Neglected Disease

Yojana Sharma | SciDev.Net | October 31, 2011

Research on drug development for neglected tropical diseases (NTDs), tuberculosis and malaria will receive a boost from a major initiative launched by the World Intellectual Property Organization (WIPO) last week (26 October). Read More »

NIH Bets Big Bucks On Big Data

Joseph Marks | Nextgov | July 23, 2013

The National Institutes of Health plans to invest up to $96 million over four years to put big data to work solving persistent health riddles, the agency said Monday. Read More »

NIH Broadens Its Role In Data Science

Anthony Brino | Government Health IT | January 11, 2013

The National Institutes of Health (NIH) is putting a fresh emphasis on health informatics, with Director Francis Collins, MD, creating a new advisory position and recruiting an associate director for Data Science. Read More »

NIH To Appoint Chief Data Official

Joseph Marks | Nextgov | January 10, 2013

The National Institutes of Health plans to recruit a new associate director to examine the potential for vast new troves of biomedical research data related to genomics, imaging, and electronic health records, the institute said Thursday. Read More »

Open Access Empowers 16-Year-Old Jack Andraka To Create Breakthrough Cancer Diagnostic

Staff Writer | Right to Research Coalition | June 11, 2013

Open Access Empowers 16-year-old to Create Breakthrough Cancer Diagnostic: An Interview with Jack Andraka and Dr. Francis Collins, Director of the National Institutes of Health Read More »

Open Access Empowers 16-Year-Old Jack Andraka To Create Breakthrough Cancer Diagnostic

Staff Writer | Right to Research Coalition | June 11, 2013

Open Access Empowers 16-year-old to Create Breakthrough Cancer Diagnostic: An Interview with Jack Andraka and Dr. Francis Collins, Director of the National Institutes of Health Read More »

Policy: NIH Plans to Enhance Reproducibility of Biomedical Research

In a recent editorial in the journal Nature, Francis Collins and Lawrence Tabak from the National Institutes of Health (NIH) discuss the concerns that NIH has with current lack of reproducibility in biomedical research, and propose steps for improving the repoducibility records. In their editorial they point out that we have traditionally considered science to be a self-correcting field. Given the expectation that over time, all reported works would be replicated by peers. Read More »

Precision Medicine Requires Unlocking Data from EHRs, Other Sources

Greg Slabodkin | HealthData Management | May 6, 2015

Venture Funding for Digital Health in 2015 Reaches 2014 Level
Health information technology is “foundational” to President Obama’s $215 million Precision Medicine Initiative aimed at treating the specific needs and characteristics of individual patients, according to Karen DeSalvo, M.D., national coordinator for HIT. Read More »

The $100,000-Per-Year Pill: How US Health Agencies Choose Pharma Over Patients

Fran Quigley | TruthOut | August 5, 2016

Don Reichmuth survived prostate cancer once before, back in 2007, so his physician was concerned when tests recently revealed the cancer had returned. Reichmuth's physician prescribed a drug called enzalutamide, marketed by the Japanese company Astellas Pharma, Inc. under the brand name Xtandi. But when the physician sent the prescription to the pharmacy, the managers of Reichmuth's insurance plan sent back an immediate refusal to approve it. Reichmuth, a retired teacher who lives in Washington State, was puzzled by the logic. Then he learned the price of the Xtandi prescription: over $9,700 each month...

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The Doctor Is In

Mark Mitchell | Government Executive | July 1, 2013

I’m a little underslept today,” Dr. Francis Collins laughs, sitting in his office in the historic Building 1 of the National Institutes of Health’s sprawling campus in Bethesda, Md., where he presides as the dean of the nation’s health. [...] Read More »

What Would Keep Ebola From Spreading In The US? Investing In Simple Research Years Ago.

Maryn McKenna | WIRED | October 13, 2014

There’s a thing you learn, when you’ve been writing about infectious diseases for a while: People love drama. They’re not so much with detail...

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Will Obama’s New $100m Brain Mapping Project Be Open Access?

Jonathan Gray | Open Knowledge Foundation Blog | April 4, 2013

On Tuesday President Obama unveiled a new $100 million research initiative to map the human brain. Read More »