precision medicine

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Halamka's Reflections on US Health IT Policy Trajectory

I’m in China this week, meeting with government, academia, and industry leaders in Guangzhou, Shenzhen, Beijing, Shanghai,  and Suzhou. The twelve hour time difference means that I can work a day in China, followed by a day in Boston. For the next 7 days, I’ll truly be living on both sides of the planet. I recently delivered this policy update about the key developments in healthcare IT policy and sentiment over the past 90 days. I’ve not written a specific summary of the recently released Quality Patient Program proposed rule which provides the detailed regulatory guidance for implementation of MACRA/MIPS, but here’s the excellent 26 page synopsis created by CMS which provides an overview of the 1058 page rule...

Health IT Execs Have a New Favorite Dirty Word

Tom Sullivan | Healthcare IT News | September 23, 2016

Cerner President Zane Burke, athenahealth CEO Jonathan Bush and eClinicalWorks CEO Girish Navani. When eClinicalWorks rechristened its flagship electronic health record software as the cloud-based 10e, CEO Girish Navani said something curious: “I don’t want to call it an electronic health record anymore.”...

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HIMSS16: Cloudera Demos Open Source Precision Medicine and Healthcare Enterprise Data Hub

Press Release | Cloudera | February 25, 2016

As the Healthcare Information and Management Systems Society (HIMSS) 2016 theme implies -- “transforming health through IT” -- healthcare organizations are increasingly focused on taking advantage of big data to personalize the patient experience and improve clinical outcomes. Cloudera’s commitment to this effort was exemplified this morning, when the company annunced its contributions to President Obama’s Precision Medicine Initiative (PMI). By implementing Cloudera Enterprise, healthcare organizations are better equipped to deliver precision medicine with a modern data platform that facilitates information sharing across silos while remaining HIPAA-compliant...

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HIMSS18: Seema Verma - Making the patient the center of our health care system

Press Release | CMS | March 6, 2018

I’ve always been struck by how seldom the patient is mentioned in discussions around value-based care. Let me be clear, we will not achieve value-based care until we put the patient at the center of our healthcare system. Until patients can make their own decisions based on quality and value health care costs will continue to grow at an unsustainable rate. This administration is dedicated to putting patients first, to be empowered consumers of health care that have the information they need to be engaged and active decision-makers in their care. Through this empowerment, there will be a competitive advantage for providers that deliver coordinated, quality care, at the best value, to attract patients who are shopping for value.

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HL7 Publishes First Domain Analysis Model for Clinical Sequencing

Press Release | HL7 | April 10, 2017

Health Level Seven International (HL7), the global authority for interoperability in healthcare information technology and the home of the Fast Healthcare Interoperability Resources (FHIR) standard, today announced that it has published the HL7 Domain Analysis Model; Clinical Sequencing, a model which captures precision medicine's use cases to facilitate interoperability of genetic and genomic data. This domain analysis model (DAM) was the basis for the design of FHIR Genomics, the genomics components designed under purview of the HL7 Clinical Genomics Work Group within FHIR Release 3...

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Hortonworks Initiates Precision Medicine Consortium to Explore Next Generation Genomics Open Source Platform

Press Release | Hortonworks, Inc. | June 28, 2016

Hortonworks, Inc., a leading innovator of open and connected data platforms, today announced the formation of a new consortium to define and develop an open source genomics platform to accelerate genomics-based precision medicine in research and clinical care. Other founding members include Arizona State University, Baylor College of Medicine, Booz Allen Hamilton, Mayo Clinic, OneOme and Yale New Haven Health...

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Hortonworks Supports the Precision Medicine Initiative

Press Release | Hortonworks | February 25, 2016

Hortonworks, Inc. today announced its commitment to the White House's Precision Medicine Initiative, a bold new research effort to revolutionize how the United States improves health and treats disease. Hortonworks has committed to providing its expertise in utilizing open data platforms and building open communities to researchers and research organizations, assisting them in using big data to address the challenges and opportunities of precision medicine. "We are thrilled to put our expertise and technology to work to support the Precision Medicine Initiative," said Rob Bearden, chief executive officer, Hortonworks. "Our open data platforms and technology can help researchers better understand the root causes of patient health issues and better predict which treatments will be most effective."...

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How the Right Data Analytics Diminish Administrative Burden on Clinicians

Megan Wood | Becker's Health IT & CIO Review | March 30, 2017

Data flooding the healthcare industry has the potential to completely revolutionize patient care and drive improved health outcomes. Yet when left inadequately structured or under-automated, the deluge of data is one contributing factor to administrative burden — a pervasive issue affecting clinicians across most specialties. Eighty percent of physicians today are professionally overextended or at capacity, leaving them with no time to see additional patients, according to the 2016 Physicians Foundation survey...

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i2b2 Foundation and tranSMART Foundation Merge to Become the i2b2 tranSMART Foundation

Press Release | The i2b2 tranSMART Foundation | May 25, 2017

The tranSMART and i2b2 foundations today announce the completion of their merger to become the i2b2 tranSMART Foundation. The new organization is a global non-profit open-source foundation facilitating the further development of precision medicine and bringing it to practice. The mission of the i2b2 tranSMART Foundation is to enable effective collaboration for precision medicine through the sharing, integration, standardization, and analysis of heterogeneous data from healthcare and research; through engagement and mobilization of a life sciences focused open-source, open-data community...

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Intel & OHSU Announce Collaborative Cancer Cloud at Intel Developer Forum

Eric Dishman | Intel Health and Life Sciences Blog | August 17, 2015

...Today, I announced at the Intel Developer Forum that we are setting our sights on making this scenario a reality through an ambitious, open Platform-as-a-Service solution called the Collaborative Cancer Cloud. The Collaborative Cancer Cloud is a precision medicine analytics platform that allows institutions to securely share patient genomic, imaging and clinical data for potentially lifesaving discoveries. It will enable large amounts of data from sites all around the world to be analyzed in a distributed way, while preserving the privacy and security of that patient data at each site...

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Interoperability and the Trough of Disillusionment

Every technology has an adoption journey. The classic Gartner hype curve travels from a Technology Trigger  to the Peak of Inflated Expectations followed by the Trough of Disillusionment. It often takes years before organizations reach the Slope of Enlightenment and finally achieve a Plateau of Productivity. Have you noticed that Congress and the popular press have entered the Trough of Disillusionment for EHRs and interoperability over the past month? Congressional staffers writing the 21st Century Cures bill (which is not yet law) seem to have concluded...

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Interoperability As A Service (IAAS): The AI Enabled Blockchain

Edward Bukstel | LinkedIn | April 18, 2017

It’s time for patients to come to terms with the fact that there is no financial incentive for healthcare providers to consolidate and normalize data from disparate providers. Patients must be cautious maintaining their patient records on a blockchain or another platform that cannot be used by other institutions, providers, or entities. Without portability, blockchains will add little value to advance patient medical record mobility. Healthcare providers may discover some indirect benefits from the consolidation of medical records — even records not immediately accessible by patients...

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Interstitial Lung Disease (ILD) Experts And Advocates Announce Formation Of Open Source Imaging Consortium (OSIC)

Press Release | Open Source Imaging Consortium (OSIC) | May 22, 2019

An international group of leading experts and advocates in the fight against idiopathic pulmonary fibrosis (IPF), fibrosing interstitial lung diseases (ILDs), and other respiratory diseases including emphysematous conditions announced today the formation of the Open Source Imaging Consortium (OSIC). This global, not-for-profit organization is a cooperative and open source effort between academia, industry and philanthropy to enable rapid advances in the detection and diagnosis of these conditions through digital imaging and machine learning.

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John Halamka Uses Big Data Analytics In Healthcare To Fight Wife's Cancer

Kristen Lee | SearchHealthIT | September 1, 2015

When John Halamka, M.D., CIO of Beth Israel Deaconess Medical Center in Boston, and his wife, Kathy, found out she had stage 3 breast cancer in 2011, they turned to big data analytics in healthcare to find the best treatment plan. Fortunately for Halamka and his wife, the Boston area is home to 17 Harvard-University-affiliated hospitals, including Beth Israel, that have opened their data for queries via a free open source, Web-based application called i2b2. Any medical record system in the country can connect to i2b2's database and EHR, Halamka said.

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LymeDisease.org Invited to Attend White House for Precision Medicine Summit

Press Release | LymeDisease.org | February 24, 2016

LymeDisease.org, the leading research advocacy organization for Lyme disease, announced today that Lorraine Johnson, chief executive officer, has been invited by the White House to participate in the upcoming Precision Medicine Initiative Summit on Thursday, February 25, in Washington, DC. Johnson, whose organization recently launched MyLymeData, the first patient-powered research project for chronic Lyme disease, will join government officials, academia, researchers, and other patient advocacy groups to discuss new and emerging approaches being taken to advance precision medicine and improve patient care...

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