Personal Genome Project

See the following -

Share Your Genetic Story with openSNP

With personal genomics services like 23andMe and deCODEme, we can ship away a cotton swab with some spit on it, and explore our genetic connections even more closely. If we open up and share that genetic data with one another, there's a lot we could discover about human phenotypes: how our height, eye color, and preferences for certain foods connect us and shape our lives and health. Read More »

Strengthening Protection of Patient Medical Data

Adam Tanner | The Century Foundation | January 10, 2017

Americans seeking medical care expect a certain level of privacy. Indeed, the need for patient privacy is a principle dating back to antiquity, and is codified in U.S. law, most notably the Privacy Rule of the 1996 Health Insurance Portability and Accountability Act (HIPAA), which establishes standards that work toward protecting patient health information. But the world of information is rapidly changing, and in this environment, U.S. rules fall precariously short in protecting our medical data...

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