NIH And CDC Launch Registry For Sudden Death In The Young

Diana Manos | Government Health IT | October 24, 2013

The National Institutes of Health and the Centers for Disease Control and Prevention have announced they are collaborating to create the Sudden Death in the Young Registry to help researchers work on preventing these type of deaths in the future.

According to NIH officials, data will be entered into a centralized database managed by a data coordinating center at the Michigan Public Health Institute and will not contain personally identifiable information.

The resulting registry will become a resource for scientists to learn more about the causes of sudden death in the young and ultimately to develop better diagnostic and prevention approaches.

The NIH's NHLBI will analyze data related to sudden cardiac death while the National Institute for Neurological Disorders and Stroke (NINDS) will participate in the registry by reviewing data on SUDEP.