data standardization

See the following -

Accessing & Using APIs from Major EMR Vendors–Some Data at Last!

Matthew Holt | The Healthcare Blog | September 19, 2016

Information blocking, Siloed data. No real inter-operability. Standards that aren’t standards. In the last few years, the clamor about the problems accessing personal health data has grown as the use of electronic medical records (EMRs) increased post the Federally-funded HITECH program. But at Health 2.0 where we focus on newer health tech startups using SMAC (Social/Sensor; Mobile OS; Cloud; Analytics) technologies, the common complaint we’ve heard has been that the legacy–usually client-server based–EMR vendors won’t let the newer vendors integrate with them...

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Congress & GAO Take Aim At DOD-VA Health Records Program

Amber Corrin and Camille Tuutti | FCW | March 7, 2013

When the Defense and Veterans Affairs departments last month announced a change of course in a long-awaited joint health records program, it sparked concerns at the Government Accountability Office. Now, the program faces further challenges from Capitol Hill. Read More »

Defense And VA To Congress On Health Records: It's The Data, Not The Software

Bob Brewin | Nextgov | July 10, 2013

Top officials at the Defense and Veterans Affairs departments said Wednesday they will create a system to exchange standard clinical health data, which will allow the departments to develop a single, shared electronic health record without the need to build a joint system from scratch. Read More »

Genomic Data Commons Heralds New Era of Data Sharing for Cancer Research

Press Release | University of Chicago | June 6, 2016


The Genomic Data Commons, a next-generation platform that enables unprecedented data access, analysis and sharing for cancer research, publicly launched at the University of Chicago on June 6, opening the door to discoveries for this complex set of diseases. The Genomic Data Commons went live with approximately 4.1 petabytes of data from National Cancer Institute-supported research programs, including some of the largest and most comprehensive cancer genomics datasets in the world...

House Committee Worried DoD, VA 'Moving The Goal Posts' On e-Health Records

Jack Moore | FederalNewsRadio.com | February 27, 2013

A House Veterans Affairs Committee hearing on the decision by the Defense and Veterans Affairs Departments to scale back plans for a joint integrated electronic-health records systems dredged up longstanding issues with the two departments' EHR efforts. Read More »

How Hospital Administrators Are Obstructing Medical Record Exchange APIs

Bruce Fryer | Programmable Web | September 12, 2017

Medical record exchange is a major topic in healthcare, needed to improve healthcare outcomes (and reduce costs) for multiple patients receiving care at multiple sites.  The discussion in the industry primarily focuses on technical challenges. In reality, many of the technical challenges have been addressed. A big factor in the inability of medical record exchange is the hospitals themselves. They block information and APIs. I’ve had two experiences with getting medical records...

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How Hospital Administrators Are Obstructing Medical Record Exchange APIs

Bruce Fryer | Programmable Web | September 12, 2017

Medical record exchange is a major topic in healthcare, needed to improve healthcare outcomes (and reduce costs) for multiple patients receiving care at multiple sites.  The discussion in the industry primarily focuses on technical challenges. In reality, many of the technical challenges have been addressed. A big factor in the inability of medical record exchange is the hospitals themselves. They block information and APIs. I’ve had two experiences with getting medical records...

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i2b2 Foundation and tranSMART Foundation Merge to Become the i2b2 tranSMART Foundation

Press Release | The i2b2 tranSMART Foundation | May 25, 2017

The tranSMART and i2b2 foundations today announce the completion of their merger to become the i2b2 tranSMART Foundation. The new organization is a global non-profit open-source foundation facilitating the further development of precision medicine and bringing it to practice. The mission of the i2b2 tranSMART Foundation is to enable effective collaboration for precision medicine through the sharing, integration, standardization, and analysis of heterogeneous data from healthcare and research; through engagement and mobilization of a life sciences focused open-source, open-data community...

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Nature Journal on the Need for Clinical-Trial Data Sharing Regulations

Editorial | Nature | May 17, 2016

Governments need to tighten regulation if the sharing of clinical-trial data is to succeed. Clinical science has a compatibility problem. Although there are set protocols to test medicines and to treat patients, no such standards exist to compare clinical-trial data. The problem arises because each research group has a preferred method of collecting and categorizing results. Differences can be as great as omitting or including the gender and ethnicity of patients enrolled, or as mundane as the vocabulary used in medical records...

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tranSMART Foundation 2016 Annual Meeting

Event Details
Type: 
Conference
Date: 
October 25, 2016 - 11:00am - October 27, 2016 - 7:00am
Location: 
UCSD Atkinson Hall
9500 Gilman Drive #0436
La Jolla, CA 92093-0436
United States

The tranSMART Foundation Annual Conference will be held at the University of California at San Diego (UCSD) in La Jolla, CA on October 25-27, 2016. The tranSMART Foundation is a non-profit organization whose aim is to provide a global open source, open data, cloud-based knowledge management platform that allows scientists to share pre-competitive translational research data...

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