rare disease treatment

See the following -

Proposed Orphan Drug Framework For Canada

James Radke | RDR: Rare Disease Report | April 15, 2014

The gold standards for Orphan Drug Policies are those in the United States and the European Union. Canada is one of the few developed countries without a regulatory framework for orphan drugs. Hopefully, that will soon change.  Health Canada are currently developing a National Orphan Drug Framework.

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The Challenge of Saving Lives with 'Big Data'

Staff Writer | BBC News | February 7, 2016

Every day, more data about our lives is being generated than ever before. When it comes to saving lives, the bigger the data the better - but what to do with it all? Ninety per cent of the data in the world has been created in the past two years alone, experts estimate - and the reason for that is technological innovation. The internet, mobile phones, cameras, sensors, bank cards and social media are just some of the items responsible for the massive volume of "big data" that is currently amassed every single second...

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