secure patient controlled shareable database of medical records

See the following -

Beth Israel's CareKit App Leverages FHIR for Patient Engagement

The following is a guest blog post from Seth Berkowitz, MD, who authors many of the innovative apps in the BIDMC Crowdsourcing program: Beth Israel Deaconess Medical Center, a teaching hospital of Harvard Medical School, has developed BIDMC@home, a new app for engaging patients using Apple’s CareKit and ResearchKit frameworks and the HealthKit API. The app provides a flexible framework to help patients manage their health from home, as directed by their physicians. The app will be piloted in several specific patient populations and will eventually be offered to BIDMC’s entire network of over 250,000 patients...

What is Patient and Family Engagement?

I recently participated in a nationwide (not the United States) healthcare IT planning effort and one recommendation was universal availability of patient portals. Several reviewers commented that patient portal is a loaded term - it implies that clinicians control the data and patients are given a view into it. One person said, “that’s so 10 years ago.” BIDMC has been working with patient/family shared medical records, Open Notes and various consumer-facing apps since 1999. Over that time we've discovered that patients typically do not want raw data, they want something actionable - the tools necessary to assist their navigation through the healthcare process...