personal data sharing

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Sage Bionetworks to Share Results of Mobile Health Research Study at Upcoming Precision Medicine Conference

Press Release | Sage Bionetworks | June 29, 2016

In the midst of several colliding perspectives on personal data sharing from both patients and researchers, it is challenging to comprehend how clinical study designs should be conducted to benefit both stakeholders. Sage Bionetworks recently began sharing data from over 9,000 participants of mPower, a mobile health research study for Parkinson's Disease. As one of the first observational assessments of human health to achieve this scale, its success is attributed to the unique study design which emphasizes transparency and trust between participants and researchers...

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