Open Humans

See the following -

GETy Awards Celebrate Unorthodox Open-Source Approaches to Accelerating Human Health Advances

Press Release | GET Conference | April 13, 2016

An “open-source” approach to accelerating human health advances is the common theme among a diverse group of medical science projects that have won six science awards honoring “excellence in participant-centered research” - a rapidly emerging field that aims to turn patients and healthy people into more active and more data-sharing participants in medical research. The awards will be given out at Harvard Medical School in Boston on April 25 at a scientific convening called GET Conference (“GET” stands for “Genomes, Environments, Traits”). “The winners of the GETy Awards are at the forefront of a research revolution that will radically accelerate the rate of human health advances,” says Jason Bobe, organizer of the GET Conference, and Executive Director of the nonprofit PersonalGenomes.org.

Open Humans Project Allows Volunteers to Share Their Personal Health Data

While many researchers encounter no privacy-based barriers to releasing data, those working with human participants, such as doctors, psychologists, and geneticists, have a difficult problem to surmount...A new project, Open Humans, seeks to resolve the issue by finding patients who are willing—even eager—to share their personal data. Read More »