data sharing

See the following -

Superbugs Will Kill 10 Million a Year by 2050

Zack Budryk | Fierce Healthcare | May 19, 2016

Healthcare experts have long warned drug-resistant superbugs are a "looming global threat," but left unchecked, they may kill someone every three seconds by 2050, according to a new report. The Review on Antimicrobial Resistance began in 2014 and in the meantime, antibiotic-resistant infections have already wrought havoc, causing several outbreaks linked to contaminated scopes and proving potentially more deadly than cancer, according to experts...

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Syapse Joins Free The Data! Initiative and Provides Software To Power Participant-centric Hereditary Gene Mutation Data

Press Release | Genetic Alliance, Syapse | July 31, 2013

Syapse, the leader in software for bringing omics into routine medical use, announced that it has joined the Free the Data! initiative. [...] Read More »

The 'Internet of Things' Is Sending Us Back to the Middle Ages

Internet-enabled devices are so common, and so vulnerable, that hackers recently broke into a casino through its fish tank. The tank had internet-connected sensors measuring its temperature and cleanliness. The hackers got into the fish tank’s sensors and then to the computer used to control them, and from there to other parts of the casino’s network. The intruders were able to copy 10 gigabytes of data to somewhere in Finland. By gazing into this fish tank, we can see the problem with “internet of things” devices: We don’t really control them. And it’s not always clear who does – though often software designers and advertisers are involved...

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The Lonely Universe Of Autoimmune Diseases

Bonnie Feldman | Rock Health | April 10, 2014

How would you feel if, after years of searching for a diagnosis you finally found out you have an autoimmune disease, and then you realize that your doctors will have to experiment on you to find the right treatment?  That’s the state of the art today in autoimmune diseases like Crohn’s, lupus, and MS.

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The New York Stem Cell Foundation Research Institute Announces Largest-ever Open Source Stem Cell Repository

Press Release | The New York Stem Cell Foundation | October 22, 2014

The New York Stem Cell Foundation (NYSCF) Research Institute, through the launch of its repository in 2015, will provide for the first time the largest-ever number of stem cell lines available to the scientific research community. Read More »

The Next Generation: A Comprehensive Electronic Health Record

Katie Lutts | 5AM Solutions | October 12, 2012

The Network for Public Health Law is holding their 2012 Public Health Law conference this week in Atlanta, focusing on the Practical Approaches to Critical Challenges in Public Health Law, and I have been in attendance...But what struck me, was how little we really take time to think about the impact the work we are doing has upon our individual lives and those of our families. Read More »

The Pistoia Alliance Calls on the Life Sciences to Support Greater Collaboration to Overcome Technology Challenges

Press Release | Pistoia Alliance | March 29, 2017

The Pistoia Alliance, a global, not for profit alliance that works to lower barriers to innovation in life sciences R&D, is calling upon the industry to improve collaborative efforts to use patient data to its full effect. In a series of keynote speeches delivered at The Pistoia Alliance’s annual member conference in London, speakers from Amgen, Accenture and AstraZeneca, discussed the need to more closely connect outcomes data with the R&D process – to help pharmaceutical companies focus their research efforts and deliver real benefits to patients. Building machine learning and deep learning systems, and incorporating data from therapeutic interventions or diagnostics into R&D is technologically challenging, and would benefit significantly from industry-wide pre-competitive collaboration...

The President’s Precision Medicine Initiative – The First Annual Check-Up

Antoinette F. Konski | JD Supra Business Advisor | January 27, 2016

Watching President Obama’s recent 2016 State of the Union Address reminded me that one year has passed since the President announced a new “precision” or personalized medicine initiative to advance personalized, effective therapies for the American public. It was during his 2015 State of the Union Address that the President stated:[1]
“[T]onight, I’m launching a new Precision Medicine Initiative to bring us closer to curing diseases like cancer and diabetes, and to give all of us access to the personalized information we need to keep ourselves and our families healthier. We can do this.”...

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The Sad State of Uncoordinated Care in the U.S.

Richard Royer | The Doctor Weighs In | September 20, 2016

Care coordination deficiencies in the U.S. healthcare system can be so frustrating that they are (almost) comical. That is a message patient activist Jessica Jacobs aired as she advocated for healthcare operational efficiency improvements and care coordination. Until her death last month, Jacobs blogged and used social media to draw attention to America’s problems with disjointed healthcare. She did this by sharing stories of the numerous system failures she experienced firsthand as a patient with complex care needs...

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The Secretary’s Ventures Fund Announces 2017 Projects

Press Release | U.S. Department of Health and Human Services | May 17, 2017
 
Health and Human Services Secretary Tom Price, M.D. today announced the selection of five entrepreneurial projects for investment by the Secretary’s Ventures Fund (HHS Ventures). The projects were chosen from across HHS and are part of the latest round of funding and support designed to advance the Department’s innovation agenda... HHS Ventures is a highly competitive effort that provides growth-stage funding and support to HHS employees with proven ideas for how to dramatically improve their office, agency, or the Department’s ability to carry out its mission...

The Technology Is in Place – It’s People and Practical Implementation That Will Enable Change Outlined by Dame Fiona Caldicott and CQC

Press Release | IMS MAXIMS | July 6, 2016

In response to the recommendations by the CQC and Dame Fiona Caldicott, Jacinta Ni Suaird, Product Director at IMS MAXIMS said: “The CQC and Dame Fiona Caldicott recommendations provide welcomed guidance in the use and safeguarding of patient’s data, which can lay the foundations for restoring public trust in this area. The recommendations call for health and care organisations to show greater leadership around data security, with a strong emphasis on providers...

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The tranSMART Foundation And BT Collaborate To Deliver Fast, Flexible Cloud-Based Applications To Life Science Organizations

Press Release | tranSMART Foundation, BT | April 30, 2014

BT joins the tranSMART Foundation to extend support to the developer community; companies to continue work on the next release of Translational Medicine Platform.

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The White House Is Pushing Precision Medicine, but It Won’t Happen for Years

Mike Orcutt | MIT Technology Review | July 18, 2016

For starters, it’s too expensive and the science isn’t advanced enough. With the right technologies to collect and make sense of biomedical information, we could speed up the pace of discoveries that lead to a new class of tailor-made drugs. That’s the argument behind the White House’s push for “precision medicine” (see “A Shot in the Arm for Obama’s Precision Medicine Initiative”). The goal of precision medicine is to provide drugs and therapies that are uniquely suited to individual patients based on their genetics and other distinguishing health information...

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Three Areas Where Health Information Technology Needs to Get its House in Order

Health reform is taking off, thanks to pressure from insurers, the promise with which innovative technologies tease us for low-cost treatments, and regulatory mandates dating back to the HITECH act of 2009. Recent hopeful signs for wider adoption of health technologies include FDA forebearance from regulating consumer health apps, calls for more support for telemedicine, and new health announcements from tech giants such as Apple and Google. While technologists push forward in all these areas, we need to keep in mind that several big unsolved problems remain. Let's not get lost in the details--these major issues have to be tackled head on. Read More »

Too Soon to Tell If EHRs Provide Good ROI

Marla Durben Hirsch | Fierce Healthcare | July 20, 2016

There’s been a lot of hoopla about the role of electronic health records in patient safety, Meaningful Use, data sharing and security. But the elephant in the room is always "do EHRs provide a good return on investment? Will EHR users make more money?" It seems, based on recent research, that the answer might be yes. First, there’s the study that EHRs are adept at increasing a provider’s charge capture. By using their EHR’s automation and enhanced coding capability, pediatric primary care physicians saw an $11.49 increase on average, per-patient collections and an $11.09 increase on average, per-patient charges, as well as an improvement in collection ratios...

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