data sharing

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Research Transparency: 5 Questions about Open Science Answered

Open science is a set of practices designed to make scientific processes and results more transparent and accessible to people outside the research team. It includes making complete research materials, data and lab procedures freely available online to anyone. Many scientists are also proponents of open access, a parallel movement involving making research articles available to read without a subscription or access fee...

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Revealed: Google AI Has Access to Huge Haul of NHS Patient Data

Hal Hodson | New Scientist | April 29, 2016

It’s no secret that Google has broad ambitions in healthcare. But a document obtained by New Scientist reveals that the tech giant’s collaboration with the UK’s National Health Service goes far beyond what has been publicly announced. The document – a data-sharing agreement between Google-owned artificial intelligence company DeepMind and the Royal Free NHS Trust – gives theclearest picture yet of what the company is doing and what sensitive data it now has access to...

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Sage Commons Congress 2012

Matthew Todd | Intermolecular | April 24, 2012

I was at the Sage Commons Congress the last few days. Meetings should be full of challenging new ideas and full of spontaneous discussion. [...] This congress was very interesting, driven by the passion of those people taking part to do science in new ways. Read More »

Scaling Up Health Knowledge at European Level Requires Sharing Integrated Data

Press Release | Dove Medical Press | June 13, 2016

...Dr Menditto continues "Combining databases from multiple countries exploiting common structural elements will help increasing the cohorts both on numerical and geographical coverage aspects. At the moment there is not a gold standard to perform multiple healthcare database integration among different countries and different health systems. The EIP-AHA represents an opportunity to compare practices, identify common needs and establish good practices and harmonized approaches with a view to maximize the effective exploitation of large data sets and provide the basis for studying population cohorts at European level...

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Scenarios for Health Care Reform (Part 1 of 2)

Andy Oram | EMR and HIPAA | May 16, 2017

All reformers in health care know what the field needs to do; I laid out four years ago the consensus about patient-supplied data, widespread analytics, mHealth, and transparency. Our frustration comes in when trying to crack the current hide-bound system open and create change. Recent interventions by US Republicans to repeal the Affordable Care Act, whatever their effects on costs and insurance coverage, offer no promise to affect workflows or treatment. So this article suggests three potential scenarios where reform could succeed, along with a vision of what will happen if none of them take hold...

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Scenarios for Health Care Reform (Part 2 of 2)

Andy Oram | EMR and HIPAA | May 18, 2017

Some health care providers balk at the requirement to share data, but their legal and marketing teams explain that they have been doing it for years already with companies whose motives are less commendable. Increasingly, the providers are won over. The analytics service appeals particularly to small, rural, and safety-net providers. Hammered by payment cuts and growing needs among their populations, they are on the edge of going out of business and grasp the service as their last chance to stay in the black...

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Scientific Data Should Be Shared: An Open Letter To The ARC

Alex O. Holcombe and Matthew Todd | The Conversation | September 26, 2012

Science (real science, not the summaries in popular books and the media) is needlessly closed to the outside world. Worse, it is closed within itself, with every lab its own silo, and little sharing of data or materials. Read More »

Sequestration Can’t Halt Government’s ‘Historic’ Health IT Spending

Frank Konkel | Nextgov | July 21, 2016

Federal health IT spending grew 27 percent annually from fiscal 2011-2015, with the market jumping from $2 billion four years ago to $6.5 billion in fiscal 2015, according to research from big data and analytics firm Govini. Civilian health agencies fueled health IT spending the most. The Health and Human Services Department increased its annual health IT spend by a compound annual growth rate of 34 percent, with about half of its total obligations driven by the Centers for Medicare and Medicaid Services, which is preparing for a major modernization effort and call center upgrade...

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Sharing Is Caring: Social Network Allows Patients to Share Diagnoses and Test Results

Alexia Severson | Healthline.com | March 4, 2013

The open-source health network PatientsLikeMe can help medical researchers connect with patients.

Sharing private information in the cloud comes with obvious risks, but it can also offer many benefits, some of which are just now coming to fruition.

PatientsLikeMe, an online community founded in 2004, which allows patients to manage their conditions and connect with others who share similar experiences, is taking this concept a step further.

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SimplyVital Health Partners With Toro Risk Consulting Group On Transformational Blockchain Healthcare Technology

Press Release | SimplyVital Health | October 17, 2017

SimplyVital Health (SVH) and Toro Risk Consulting Group, LLC (Toro) have announced an affiliation that brings the transformational healthcare technology of SVH together with the marketing, legal, and risk expertise of Toro. Toro recognized early on the potential that SVH's pioneering platform has to help providers transition from fee-for-service to value-based healthcare. New value-based payment models, such as bundled payments, allow providers to realize savings if they can decrease the average cost of patient care...

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SMART On The Agenda At AMIA 2012

Staff Writer | SMART Platforms | November 3, 2012

The AMIA 2012 Annual Symposium begins today in Chicago, where it is currently “Informatics Week” as declared by Mayor Rahm Emanuel. Read More »

Standards and Open Source Make Advances in Apps and Data Exchange for Health

I try to be optimistic about health care, and I managed to move my mood meter in that direction last month after talking about advances in data sharing, standards, and interoperability with a few people involved in the open FHIR standard: Grahame Grieve from the Core FHIR Development Team, David Hay from the FHIR Management Group, and Josh Mandel, a research scientist working on the open-source SMART Platform. Read More »

Strengthening Protection of Patient Medical Data

Adam Tanner | The Century Foundation | January 10, 2017

Americans seeking medical care expect a certain level of privacy. Indeed, the need for patient privacy is a principle dating back to antiquity, and is codified in U.S. law, most notably the Privacy Rule of the 1996 Health Insurance Portability and Accountability Act (HIPAA), which establishes standards that work toward protecting patient health information. But the world of information is rapidly changing, and in this environment, U.S. rules fall precariously short in protecting our medical data...

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Study Shows Electronic Health Information Exchanges Could Cut Billions in Medicare Spending

Press Release | University of Notre Dame | September 13, 2017

Spending on entitlement programs like Medicare and Medicaid consumes some two-thirds of all federal spending, but new research from the University of Notre Dame shows that information technology investments in health care lead to significant spending reductions — potentially in the billions of dollars...

Suddenly It’s All About The APIs

Sean Nolan | Family Health Guy | September 9, 2012

[...Turns] out I’ve got a number of events coming up where I’m on tap to discuss the emergence of “APIs” in Health and what it might mean for interoperability and adoption. The first of these is tomorrow at ITdotHealth at Harvard; great to follow-up the meeting that kicked off so much of the “Health Internet” movement back in 2009! Read More »