data sharing

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ONC Announces Blockchain Challenge Winners

Press Release | U.S. Department of Health and Human Services | September 1, 2016

The Department of Health and Human Services’ Office of the National Coordinator for Health Information Technology (ONC) today announced the winners of the Use of Blockchain in Health IT and Health-related Research Challenge.  A Blockchain—most commonly associated with digital currency—is a data structure that can be timed-stamped and signed using a private key to prevent tampering.  ONC received more than 70 submissions from a wide range of individuals, organizations and companies addressing ways that Blockchain technology might be used in health and health IT to protect, manage, and exchange electronic health information...

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ONC Details Plan to Improve Data Standards, Big Data Analytics

Sara Heath | Health IT Analytics | May 17, 2016

ONC has proposed several pieces of legislation promoting better and more effective data standards for health information exchange, which would help to support the use of healthcare big data analytics to improve patient care. According to a recent blog post published by ONC’s Karen Desalvo and Lisa Lewis, the agency has proposed several pieces of legislation in an effort to keep pace with the quick evolution of healthcare IT...

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Open Data Key To Tackling Neglected Tropical Diseases

Open data access could promote collaborations among researchers in Africa and help in the fight against malaria, tuberculosis (TB) and neglected tropical diseases such as sleeping sickness, also called African trypanosomiasis. At a time when demand for open data in health and drug discovery is dominating the digital space, some researchers say the model could work for Africa and alleviate the sufferings of many from these diseases. Following the call on 23 April this year from the WHO for the disclosure of all results from clinical trials of new medicines, there is a push towards greater transparency.

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Open Data Projects Win Wellcome Trust, NIH and HHMI Open Science Prize

The Open Science Prize, a new initiative from the US National Institutes of Health (NIH), Howard Hughes Medical Institute (HHMI) and the Wellcome Trust, encourages and supports open science approaches that generate benefit to society, advance research and spur innovation. An integral component of the selection process is demonstrated use and generation of open data, so PLOS is proud that this year’s winner of the Open Science Prize is PLOS author and evolutionary, computational biologist Trevor Bedford of the Fred Hutchinson Cancer Research Center in Seattle, Washington...

Open Science Prize Goes to Software Tool for Tracking Viral Outbreaks

Press Release | Fred Hutch | February 28, 2017

“Everyone is doing sequencing, but most people aren’t able to analyze their sequences as well or as quickly as they might want to,” Bedford said. “We’re trying to fill in this gap so that the World Health Organization or the U.S. Centers for Disease Control and Prevention — or whoever — can have better analysis tools to do what they do. We’re hoping that will get our software in the hands of a lot of people”...

Open Targets: New Name, New Data

Press Release | Wellcome Trust Sanger Institute, European Bioinformatics Institute | April 19, 2016

Following the successful launch of its Target Validation platform at the end of 2015, the Centre for Therapeutic Target Validation has released its first open experimental datasets. Now renamed Open Targets, the pioneering public–private initiative remains committed to speeding up the discovery of new medicines. Open Targets projects use genome-scale experiments and analysis to provide evidence on the biological validity of therapeutic targets – and to glean insights into the likely effectiveness of pharmacological intervention on these targets...

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Patient-Generated Data Is The Future Of Care, VA Official Says

Neil Versel | MobiHealthNews | July 18, 2013

Patient engagement is on the minds of a lot of people in healthcare, spurred not only by a requirement in Stage 2 Meaningful Use regulations, but by imperatives to improve the quality of care and boost patient satisfaction. [...] Read More »

Peer Learning Helps Tanzania Reach New Ground with Open Data

When we introduced Tanzanian open data officials to their UK counterparts they shared home truths about problems, gaining new perspective and inspiration to engage users, communicate more and seek support from those who can help. Learning from peers is essential to building momentum behind new open data programmes. As part of our work with the Tanzanian government we were delighted to facilitate their meeting with key figures from government, NGOs, businesses, NGOs and startups in the UK, during a London Study Tour...

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Pharma, Data Veteran Stephen Friend Bites At Apple’s Health Offer

Alex Lash | Xconomy | June 23, 2016

Consumer tech giant Apple, which has spent considerable effort positioning its products as health and fitness helpers, has just hired someone who knows Big Pharma and Big Data. Stephen Friend, a veteran of drug R&D and, more recently, a nonprofit effort to foster more collaborative biomedical research and more data sharing, is joining Apple in an unspecified capacity. The news emerged today from Sage Bionetworks, the Seattle nonprofit that Friend founded after leaving drug giant Merck, where he was a senior research executive for eight years...

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Precision Medicine Initiative Needs Help with Data Sharing Barriers

Greg Slabodkin | HealthData Management | August 25, 2015

The White House is looking for input from the healthcare industry to identify new information technology activities that can help make President Obama’s $215 million Precision Medicine Initiative a reality.

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Precision Medicine, Blue Button Among White House Big Data Efforts

Nathan Boroyan | HealthIT Analytics | September 30, 2016

Precision medicine, medical research, and improved patient engagement through initiatives like Blue Button are among the highlight achievements of the Obama Administration’s emphasis on data transparency and information sharing, says a White House fact sheet celebrating the nation’s big data progress. The following is a rundown of some of the specific open-data health efforts of the Obama Administration...

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Private Health Funds Accused of Misusing Patient Data for Commercial Gain

Michael Bailey | AFR Magazine | July 25, 2016

Private health insurers that also own dental surgeries are misusing data obtained through the HICAPS claiming system for commercial benefit, the Australian Dental Association has warned a Productivity Commission inquiry into expanded data sharing. The inquiry, for which submissions close on July 29, is examining the benefits and costs of data being shared more widely between public sector agencies, private sector organisations, the research sector, academics and the community...

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PwC-Led Team To Offer 'Open Source' EHR To DoD

Marla Durben Hirsch | Fierce EMR | September 8, 2014

PwC has joined forces with Medsphere, DSS, Inc. and General Dynamics Information Technology to vie for the coveted U.S. Department of Defense Healthcare Management Systems Modernization (DHMSM) electronic health record contract, and plans to merge "open source" software with commercial applications in its proposal, PwC has announced...

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Reducing Medical Errors with Improved Communication, EHR Use

Kyle Murphy | EHR Intelligence | June 6, 2016

EHR use can help prevent medical errors only when lines of communication are open and reliable. The revelation that medical error is the third leading cause of death in the United States sent unsettling reverberations through the healthcare industry last week, but the news is likely only the tip of the iceberg and much more must be done to address this growing health issue...

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Report Finds Health, Fitness Apps Lag in Privacy Polices Compared to Other Apps

Heather Mack | mobihealthnews | August 18, 2016

Health and fitness apps may potentially reveal data-enabled insights into the daily lives of those who use them, but what they sometimes fail to reveal are the ways they use the data collected on users. A recent study from the Future of Privacy Forumfound that -- compared with other apps in the iOS and Android marketplaces -- health and fitness apps lag in privacy policies, with about 60 percent offering such information compared to 76 percent of general apps...

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