data sharing

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Data+ Awards: Harvard's Clean Energy Project Gets A Massive Speed Boost

Mary K. Pratt | Computerworld | August 26, 2013

Harvard University professor Alan Aspuru-Guzik and his team are supporting the search for organic compounds that could be used in the next generation of solar power cells. Read More »

David Ho Highlights Launch of Bio-IT Asia Conference

Kevin Davies and Allison Proffitt | Bio-IT World | June 6, 2012

Ten years after the launch of the Bio-IT World Conference & Expo series in Boston, the conference made its debut in Asia in the sparkling Marina Bay Sands convention center. The trio of speakers who opened the three-day meeting was veteran HIV researcher David Ho, bio-IT consultant Chris Dagdigian, and AstraZeneca bioinformatician Yaron Turpaz.

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DoD, VA Reassure Congress Of Continued Growth Of Health Data Sharing

Jason Miller | Federal News Radio | July 11, 2013

Defense and Veterans Affairs department officials are reassuring House lawmakers that just because they are developing separate electronic health systems, it doesn't mean the two departments aren't sharing electronic health records today and will share even more in the future. Read More »

DoD, VA, and Federal Healthcare Leaders to Discuss iEHR Progression and Important Strategies for Successful Data Sharing and Interoperability

Press Release | Defense Strategies Institute | March 22, 2012

Defense Strategies Institute (DSI) brought together senior leadership in October 2011 to look at the iEHR architectural roadmap that was released last spring, and now they are answering the call of “How to achieve success across domain data sharing and the iEHR while working towards clinically relevant, technically feasible, and financially viable innovations.”  Read More »

EdLogics Addresses Health Literacy Gap with Linux Container and Cloud Solutions from Red Hat

Press Release | Red Hat, Inc. | November 7, 2016

Red Hat, Inc., the world's leading provider of open source solutions, today announced that EdLogics, a health education-based consumer engagement company and innovator in game-based learning, has built its digital health literacy platform on container and cloud solutions from Red Hat, including Red Hat OpenShift Container Platform, Red Hat JBoss Middleware, and Ansible by Red Hat. EdLogics’ Education-as-a-Service offering, based on Red Hat technology, is aiming to transform the way consumers learn about health and improve health literacy while simultaneously cutting consumer costs...

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EHRs And Multi-Provider Use: Lessons From The VA

Austin Frakt | The Health Care Blog | August 17, 2009

With billions of dollars of stimulus funds available and the President and state governors promoting them, electronic health records (EHRs) are likely to become commonplace in the U.S. health care system. [...] While EHRs are praised for their promise to increase efficiency and safety, it is still an open question how much of those benefits will be realized or when. Read More »

Elsevier Acquisition Highlights the Need for Community-based Scholarly Communication Infrastructure

Heather Joseph and Kathleen Shearer | SPARC | September 6, 2017

Like many others in the scholarly community, we were very disappointed to learn about the recent acquisition by Elsevier of bepress, the provider of the popular Digital Commons repository platform. The acquisition is especially troubling for the hundreds of institutions that use Digital Commons to support their open access repositories. These institutions now find their repository services owned and managed by Elsevier, a company well known for its obstruction of open access and repositories...

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Elsevier Donates Unified Data Model to The Pistoia Alliance

Press Release | Elsevier, Pistoia Alliance | October 10, 2017

Elsevier, the information analytics business specializing in science and health, has announced it is donating its Unified Data Model (UDM) to The Pistoia Alliance, a global, not-for-profit alliance that works to lower barriers to innovation in life sciences R&D. The UDM is an XML file format originally developed by Elsevier to improve the upload of external data sets into its tools. It will now be developed and extended under the stewardship of The Pistoia Alliance, with the ultimate aim of publishing an open and freely available format for the storage and exchange of drug discovery data. The UDM will become a common model allowing data to be easily shared and integrated between parties. This will greatly accelerate drug discovery research and overcome a shared barrier to collaboration...

Epic and Other EHR Vendors Caught in Dilemmas by APIs (Part 1 of 2)

Andy Oram | EMR and HIPAA | March 15, 2017

The HITECH act of 2009 (part of the American Recovery and Reinvestment Act) gave an unprecedented boost to an obscure corner of the IT industry that produced electronic health records. For the next eight years they were given the opportunity to bring health care into the 21st century and implement common-sense reforms in data sharing and analytics. They largely squandered this opportunity, amassing hundreds of millions of dollars while watching health care costs ascend into the stratosphere, and preening themselves over modest improvements in their poorly functioning systems...

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Few U.S. Hospitals Can Fully Share Electronic Medical Records

Lisa Rapaport | Reuters | October 2, 2017

Less than one in three U.S. hospitals can find, send, and receive electronic medical records for patients who receive care somewhere else, a new study suggests. Just 30 percent of hospitals had achieved so-called interoperability as of 2015, the study found. While that’s slight improvement over the previous year, when 25 percent met this goal, it shows hospitals still have a long way to go, researchers report in Health Affairs...

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Five Major Drug Chains To Adopt Blue Button Prescription Standards

Bob Brewin | Nextgov | February 10, 2014

Five major national pharmacy chains with a total of more than 20,000 stores throughout the country have signed on to the Blue Button health information sharing initiative pioneered by the Veterans Affairs Department in 2010, the White House said in a blog post. Read More »

Five Ways Consortia Can Catalyse Open Science

Joel Cutcher-Gershenfeld, Karen S. Baker, Nicholas Berente, Courtney Flint, Gabriel Gershenfeld, Brandon Grant, Michael Haberman, John Leslie King, Christine Kirkpatrick, Barbara Lawrence, Spenser Lewis, W. Christopher Lenhardt, Matthew Mayernik, Charles McElroy, Barbara Mittleman, Namchul Shin, Shelley Stall, Susan Winter& Ilya Zaslavsky | Nature | March 29, 2017

“I am going to my grave with my disk drive in my cold dead hands.” So a senior scientist told a junior researcher, who related the tale at a 2013 US National Science Foundation (NSF) workshop on the reuse of physical samples in the geosciences. Sharing — of data sets, metadata, models, software and other resources — promises to speed discoveries, improve reproducibility and expand economic development. But it requires people to change. Overcoming personal reluctance is doubly difficult because many aspects of the scientific enterprise undermine sharing. Right now, most departments, funders and journals presume that data are proprietary from collection to publication..

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Fixing The Background Technologies On Which Health Apps Depend

Andy Oram | Rock Health | April 3, 2014

Developers are flocking to health IT with the laudable goals of making a difference in people’s health (and earning some money in the process). The complex and balkanized field presents numerous barriers to entrepreneurs breaking into the space...

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Food Fraud: Labels On What We Eat Often Mislead

Catherine Zuckerman | National Geographic | July 12, 2013

Despite trend in local, "authentic" foods, many aren't what they seem. Read More »

Genomic Data Commons Heralds New Era of Data Sharing for Cancer Research

Press Release | University of Chicago | June 6, 2016


The Genomic Data Commons, a next-generation platform that enables unprecedented data access, analysis and sharing for cancer research, publicly launched at the University of Chicago on June 6, opening the door to discoveries for this complex set of diseases. The Genomic Data Commons went live with approximately 4.1 petabytes of data from National Cancer Institute-supported research programs, including some of the largest and most comprehensive cancer genomics datasets in the world...